REACH IS SOCIAL! FOLLOW, LIKE, SHARE US & SO MUCH MORE…


Support begins with a strong community; It's easier when you're not alone. Join our online communities to find HD support, make connections, share information, or whatever you are looking for!

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REACH IS SOCIAL! FOLLOW, LIKE, SHARE US & SO MUCH MORE…


Support begins with a strong community; It's easier when you're not alone. Join our online communities to find HD support, make connections, share information, or whatever you are looking for!

Reach Blog

Learn about how Hirschsprung Disease has affected people around the world. Our blog features raw
stories of hurdles, strength and hope from people living with HD or family members who support them.


 

Follow Roo's Journey

 Reach board member Liz Crawford shares how she navigates through her son Malachi's life with Hirschsprung Disease through a blog she created after Malachi was diagnosed. Please enjoy reading Liz's caring words through her loving motherly voice with a pinch of humor, which as HD parents know is always the best medicine! 


do you have a question? ask our doctors!

Use this form to contact our two board member doctors Dr. Allan Goldstein, from Boston Massachusetts General Hospital & Dr. Jacob Langer, from Sick Kids Hospital in Toronto Canada.

If you would like to schedule a consultation with a pediatric surgeon or gastroenterologist specializing in Hirschsprung’s Disease, and are located in the US, or are willing to travel to Boston, you can make an appointment with the Neurogastroenterelogy Program (MassGeneral Hospital for Children) at 617-726-2913.

Name *
Name
Please include your city/location and the doctors you have been seeing.

If you have questions or concerns,
you can reach us at reachirschsprungs@gmail.com

To support our fundraising efforts,
contact us at kyacula@swishproductions.com

Connecting With Online Communities: Social Pages


Use these pages to grow your social network and connect with others in the Hirschsprung’s Community. You can also read about fellow HD parents who are blogging about Hirschsprung’s!

Connecting With Online Communities: Social Pages


Use these pages to grow your social network and connect with others in the Hirschsprung’s Community. You can also read about fellow HD parents who are blogging about Hirschsprung’s!

HIRSCHSPRUNG’S COMMUNITY

A forum for anyone with a family member living with Hirschsprung’s disease. A place to connect, dialogue, and share stories with others who understand.

HIRSCHSPRUNG’S DISEASE FAMILY SUPPORT GROUP

A support group focused on encouraging families to share their stories, tips and tricks from living with Hirschsprung’s disease.

LIFE WITH HD

A hub for families living with HD to connect and learn about what to expect for alifewithHD.

Stay connected.


Stay connected.


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We have a vibrant and active online community of people like you who are living with Hirschsprung's Disease. They look forward to hearing your story and sharing theirs.

Helpful Links


These are pages recommended by our board that you might find good to use as resources.

Helpful Links


These are pages recommended by our board that you might find good to use as resources.

AGMD

The Association of Gastrointestinal Motility Disorders is a non-profit initiative aimed at helping individuals with digestive motility disorders.

IFFGD

The International Foundation for Functional Gastrointestinal Disorders focuses on informing, assisting and supporting people affected by gastrointestinal disorders.

PULL-THRU NETWORK

The Pull-thru Network provides information, support and advocacy for families living with congenital anorectal, colorectal or urogenital disorders.

APSA

The American Pediatric Surgical Association’s three part article about Hirschsprung’s disease and the various surgical procedures children may undergo.

Manitoba Children’s Hospital Dr. Goodbear Blog