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We're here for you.


REACH is committed to improving the lives of children and families with Hirschsprung's Disease by increasing awareness, promoting education, connecting individuals and supporting research.

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We're here for you.


REACH is committed to improving the lives of children and families with Hirschsprung's Disease by increasing awareness, promoting education, connecting individuals and supporting research.

"We are thankful we live in the digital age so we can read about adults with HD leading good lives or connect with experts in the field with our questions."

- Dylan's Story

You're not alone.


1 in 5,000 newborns are affected by Hirschsprung's Disease.

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You're not alone.


1 in 5,000 newborns are affected by Hirschsprung's Disease.

what is hirschsprung's disease?

When the colon has no nerve cells, the area is called the ganglionic segment

It affects the bottom of the colon first, but can move up the colon and into the small intestine, leaving portions of the colon paralyzed and unable to expel waste. There's a risk of serious intestinal inflammation, often referred to as enterocolitis.

Infants and children with Hirschsprung’s Disease have difficulty passing stool and typically have a distended abdomen. They may experience constipation, vomiting and loss of appetite.

You can help us.


We support research that promotes understanding and new ways of treating this disease.

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You can help us.


We support research that promotes understanding and new ways of treating this disease.

Help us improve lives

Donations and fundraising help us support cutting-edge research.